Hello all....
It's been such a long while since I have emailed all of you. First, let me thank each of you for all the love and support you have given me so far. It has been a challenging journey that has lead me to many wonderful discoveries, but there is still a way to go till I am fully myself again. So, I am writing to all of you to request your support. In December last I sent out a mail to update on my care and health. Since then I have come forward further than the doctors and therapist at Rancho Los Amigos could have ever thought!!
Now I find myself in a place I would have not thought four years ago. Please understand this is a large challenge for me to ask for support. Where I am is in need of several means of support.
1. One of the types of treatment that will help me tremendously is hyperbarics. And at this time they are not approved in our country for TBI (tramatic brain injury) treatment. There is only one clinical trial for my type of injury and age. It is in Salt Lake City at the LDS hospital and I have been accepted into the program. There are a few barriers in the way at this time. The first being the cost of the program. They are charging $25 per session with 60 sessions in the trial. The cost for this will be $1,500. I estimate that with travel cost, 2 air tickets one way for drivers to help me from San Diego to Salt Lake and back from Salt Lake and tires and tune-up for my car will all total $3,000 including hyperbarics.
I would not be asking if this was not such an awesome opportunity to become more of me. The cost of one treatment in our country ranges from $125 to $200 depending on where you go, the pressure and time frames so the needed 60 sessions would not be able to happen and cost way more than the clinical trials. For safety with a TBI you must have MD who has worked with TBI. These types are few and far between. The trail in Salt Lake is headed by Dr. Leland Weaver who has worked in this capacity for many years and has an excellent repretation for his research in this field. I feel very greatful for this opportunity.
The results so far are subtle. I am already a miracle as told by the team at Rancho Los Amigos. They told me that only 5% of the people who had my injury ever make it back. So I know there is a reason for me to do what ever I can to come further forward. Currently I have 6 congitive challenges,then a spine injury, and finally sight/smell/taste/touch/hearing challenges. I work on them with several teams of Mds, therapists, etc.
2. Spiritual and emotional support.
Prayers are always welcome. Emails as well. One challenge is I keep pushing myself to do more each day. In reality the best thing is to rest two times a day to assist with healing so I do not over load my brain and exhaust my body.But most days I do not get to do this, and I get very exhausets, and this worsens my challenges.
3. My home is somewhere when I can make a living to pay for it. In the mean time one way for me to be safe and have a place is to house sit. If you or any of your friends will be traveling and they need someone to care for their home let me know.
I know that each of you love and want me to be functioning at my highest self. What I have gained so far is miracle and I am so blessed, but I am still not my whole self. I know that all of you want me to continue getting better, instead accepting being only partially healed. My heart tells me that I can trust that each of you will be able to do a bit to help me in this capacity. Any way that you can support me, whether finical or otherwise will be a wonderful blessing. My goal is to leave for Salt Lake the middle of August. That means I need to have responses ASAP.
Financial support can be sent to: P.O. Box 269 Solana Beach CA 92075
Or if you like call me 760 715 3344 and I will give you the numbers to the account and you can make a deposit at any Chase branch. Then call or emial me to tell me of your gift.
Please let me know what you can do to support me, even if it can only be prayers. Thank you in advance for all of your love and kindness.
in the center of all of life's happenings I know that "all is well...all is good......"
Charlene
Hello all....
It's been such a long while since I have emailed all of you. First, let me thank each of you for all the love and support you have given me so far. It has been a challenging journey that has lead me to many wonderful discoveries, but there is still a way to go till I am fully myself again. So, I am writing to all of you to request your support. In December last I sent out a mail to update on my care and health. Since then I have come forward further than the doctors and therapist at Rancho Los Amigos could have ever thought!!
Now I find myself in a place I would have not thought four years ago. Please understand this is a large challenge for me to ask for support. Where I am is in need of several means of support.
1. One of the types of treatment that will help me tremendously is hyperbarics. And at this time they are not approved in our country for TBI (tramatic brain injury) treatment. There is only one clinical trial for my type of injury and age. It is in Salt Lake City at the LDS hospital and I have been accepted into the program. There are a few barriers in the way at this time. The first being the cost of the program. They are charging $25 per session with 60 sessions in the trial. The cost for this will be $1,500. I estimate that with travel cost, 2 air tickets one way for drivers to help me from San Diego to Salt Lake and back from Salt Lake and tires and tune-up for my car will all total $3,000 including hyperbarics.
I would not be asking if this was not such an awesome opportunity to become more of me. The cost of one treatment in our country ranges from $125 to $200 depending on where you go, the pressure and time frames so the needed 60 sessions would not be able to happen and cost way more than the clinical trials. For safety with a TBI you must have MD who has worked with TBI. These types are few and far between. The trail in Salt Lake is headed by Dr. Leland Weaver who has worked in this capacity for many years and has an excellent repretation for his research in this field. I feel very greatful for this opportunity.
The results so far are subtle. I am already a miracle as told by the team at Rancho Los Amigos. They told me that only 5% of the people who had my injury ever make it back. So I know there is a reason for me to do what ever I can to come further forward. Currently I have 6 congitive challenges,then a spine injury, and finally sight/smell/taste/touch/hearing challenges. I work on them with several teams of Mds, therapists, etc.
2. Spiritual and emotional support.
Prayers are always welcome. Emails as well. One challenge is I keep pushing myself to do more each day. In reality the best thing is to rest two times a day to assist with healing so I do not over load my brain and exhaust my body.But most days I do not get to do this, and I get very exhausets, and this worsens my challenges.
3. My home is somewhere when I can make a living to pay for it. In the mean time one way for me to be safe and have a place is to house sit. If you or any of your friends will be traveling and they need someone to care for their home let me know.
I know that each of you love and want me to be functioning at my highest self. What I have gained so far is miracle and I am so blessed, but I am still not my whole self. I know that all of you want me to continue getting better, instead accepting being only partially healed. My heart tells me that I can trust that each of you will be able to do a bit to help me in this capacity. Any way that you can support me, whether finical or otherwise will be a wonderful blessing. My goal is to leave for Salt Lake the middle of August. That means I need to have responses ASAP.
Financial support can be sent to: P.O. Box 269 Solana Beach CA 92075
Or if you like call me 760 715 3344 and I will give you the numbers to the account and you can make a deposit at any Chase branch. Then call or emial me to tell me of your gift.
Please let me know what you can do to support me, even if it can only be prayers. Thank you in advance for all of your love and kindness.
in the center of all of life's happenings I know that "all is well...all is good......"
Charlene
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